I don’t need to rewind too far because most of my story is published so let’s go back to… Wow, my 2002 Alice In Wonderland diary! An entry reading “weird neurological sh*t, double vision and tingling all over” then an admission to Fulham’s Chelsea and Westminster hospital for investigation… “Neurological episode with idea of cause”. These episodes very slowly increased in occurrence and longevity to now practically daily for hours.
I’m literally falling down the rabbit hole into Wonderland.
Basically I suffer with – either together or separately – erratic paraesthesia all over, left sided sensory loss, numbness, dizziness and blurred or double vision, breathlessness, worsening fatigue and my funny turns. Diagnoses? Extensive examinations from multiple disciplines revealed functional neurological disorder aka conversion disorder and “downbeat nystagmus” (sounds like a joke Roman name from The Life of Brian).
And stage 2 heart failure as a result of dilated cardiomyopathy. Whit da feck??? That was found on an echocardiogram a year ago and 24hr ECG. I’m stunned. On Candesartan and Bisoprolol and see heart failure nurse plus a phone call away should I need advice/support. One of life’s progressive problems.
It’s quite funny how my psychologist deemed me politically progressive and I enjoy progressive dance music. I’m a progressive borderline strong with mousey brown hair. My favourite animal is a mouse and Mouse is fittingly my nickname.
© Copyright: Sharon Lawson™